COPR Member Johnson Tours NIDDK Laboratory
December 2007 / National Institutes of Health, Bethesda, Maryland
COPR Member Nicole Johnson, M.P.H.(c), visited the laboratory of Dr. David Harlan in the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and aired the tour on a segment of dLife. Dr. Harlan spoke about diabetes research and innovations in pancreatic cell imaging and cell transplantation. The tour and interview were a look into some of what NIDDK is currently doing in diabetes research. The point and goal was to bring NIH/NIDDK science to people living with disease and to translate some of the exciting progress at NIH/NIDDK into potential and hope for those who are suffering. The interview and tour aired twice in 2007.
COPR Member Lindquist Participates on the NIH Office of Science Policy Working Group on Participant and Data Protection for the Genetic Association Information Network (GAIN) and Genome-wide Association Studies (GWAS)
October 2007 / Bethesda, Maryland
COPR Member Cynthia Lindquist, Ph.D., M.P.A., is participating on the NIH Office of Science Policy’s Working Group on Participant and Data Protection for the Genetic Association Information Network (GAIN) and Genome-wide Association Studies (GWAS), which falls under the NIH Director's Advisory Committee.
Information on GWAS was presented at the November 2006 COPR meeting by Dr. Susan Shurin, Deputy Director of the National Heart, Lung, and Blood Institute. At the October 2007 COPR meeting, the Director's Update included a statement about NIH's receipt of over 200 public comments on the GWAS policy. Dr. Kington, who participated for Dr. Zerhouni, stated that the Director’s Council would be forming a working group to provide independent advise on participant and data protections. The Working Group will have a 2-hour teleconference in January 2008.
COPR Member Furlong Presents to Nursing Students
October 2007 / Omaha, Nebraska
Beth Furlong, R.N., Ph.D., J.D., presented the Overview of the National Institutes of Health slide presentation and discussed her role as a COPR member to nursing students at Creighton University School of Nursing in Omaha, Nebraska.
COPR Member Margo Produces Interview with Dr. Zerhouni
October 2007 / Bethesda, Maryland
Matthew Margo, LL.M., produced a 30-minute CBS Cares Radio interview with Dr. Zerhouni and the internationally recognized reporter Charles Osgood in July. The interview is available online at www.wcbs880.com/topic/play_window.php?audioType=Episode&audioId=1032057.
COPR Member Palermo Presents Comments at the NIH Peer Review Consultation Meeting
October 2007 / New York, New York
Ann-Gel Palermo, M.P.H., presented comments on strategies for facilitating community partnership engagement in research among principal investigators, applicants, and peer reviewers with the goal of increasing the rigor, relevancy, and impact of NIH-funded research at the NIH Peer Review Regional Consultation Meeting in New York City on October 8.
Several COPR Members Join the NIH Plain Language Evaluation and Awards Subcommittee
August 2003–2007 / Bethesda, Maryland
COPR members participate as reviewers and judges for consumer-oriented products produced by NIH communications offices and entered into the NIH Plain Language Awards Program. Early in its efforts, the NIH formed a Plain Language Coordinating Committee (PLCC). The PLCC plays a key role in encouraging the use of plain language by developing and offering training, providing plain language resources, and sponsoring an annual awards program. Previous and current participants include James Armstrong, Ruth Browne, Sc.D., M.P.H., M.P.P., Barbara Butler, Linda Crew, R.N., M.B.A., Frances Dunston, M.D., M.P.H., Rafael Gonzalez-Amezcua, M.D., Ellen Grant, Debra S. Hall, Ph.D., Nicole Johnson, M.A., M.P.H., Nicolas Linares-Orama, Ph.D., Ted Mala, M.D., M.P.H., Michael Manganiello, M.P.A., Marjorie Mau, M.D., M.S., Rodrigo A. Muñoz, M.D., Dawna Torres Mughal, Ph.D., Ann-Gel Palermo, M.P.H., Leonard Tamura, Ph.D., Zelda Tetenbaum, and Donald Tykeson.
COPR Member Crew Speaks at the Greer Chamber of Commerce
August 24, 2007 | Spartanburg, South Carolina
Linda Crew, R.N., M.B.A., presented “How NIH advances help address health care costs,” to more than 100 local business leaders, including major hospitals in the area, from the Greer Chamber of Commerce. The meeting was sponsored by the Spartanburg Regional Health Care System. In her presentation, Ms. Crew emphasized Dr. Zerhouni’s four Ps, as a way to preempt chronic diseases and reduce long-term health care costs. The four Ps are described as the future paradigm of medicine: predictive, personalized, preemptive, and participatory.
COPR Member Ahmed Interviews with Local National Public Radio Affiliate
May 30, 2007 / Milwaukee, Wisconsin
Syed Ahmed, M.D., M.P.H., Dr.P.H., interviewed with WUWM Lake Effect (89.7 FM), his local National Public Radio station in Milwaukee, Wisconsin. Dr. Ahmed discussed his role as a COPR member and his role as the Director of the Center for Healthy Communities in Wisconsin.
COPR Member Crew Assists with the Lupus Genetics Study
May 18, 2007 / Oklahoma
Linda Crew, R.N., M.B.A., was asked to provide information for the Lupus Genetics Study. She provided information about her personal experience with lupus and her professional experience working with the Hispanic/Latino communities. Ms. Crew discussed ways to conduct outreach to the Hispanic/Latino community about lupus. The Lupus Genetics Study is sponsored by the Oklahoma Medical Research Foundation.
COPR Members Participate in an NCRR Workshop on Fostering Collaborative Community-Based Clinical and Translational Research
May 15, 2007 / Bethesda, Maryland
Elmer Freeman, M.P.H., facilitated a session at the National Center for Research Resources (NCRR) Workshop on Fostering Collaborative Community-Based Clinical and Translational Research. COPR Members Marjorie Mau, M.D., M.S., and Naomi Cottoms also attended the workshop. NCRR convened the one-day workshop to focus on key barriers to and enablers of effective academic-community partnerships for clinical and translational research. The workshop was held in conjunction with the Agency for Healthcare Research and Quality (AHRQ) Practice-Based Research Networks 2007 National Research Conference. The goal of the workshop was to identify strategies and best practices for conducting collaborative community-based research, particularly in minority communities and other medically underserved communities where health disparities persist.
NCRR conducted a follow-on workshop in Los Angeles, California, on September 14, 2007. The products of these workshops will include specific recommendations for NCRR initiatives to enhance clinical and translational research in underserved communities. The workshops will also encourage efforts to strengthen existing partnerships and build new partnerships among government agencies, academic organizations, and private-sector organizations that are working to improve health care and community health outcomes.
COPR Member Ahmed Speaks to NLM’s Board of Regents Subcommittee on Outreach and Public Liaison
May 2007 / Bethesda, Maryland
Syed Ahmed, M.D., M.P.H., Dr.P.H., participated in the National Library of Medicine’s Board of Regents Subcommittee on Outreach and Public Liaison, which is seeking new approaches to outreach and information dissemination with the public.